Wednesday, 19 November 2014

Lupus Awareness

I never seem to quite catch-on to this blogging thing. 

I see all these amazing people, doing amazing things. 

Changing the way people think, feel and create. 

I do no such thing, I don't reach a huge audience, I don't have a new adventure everyday. 

I don't live organically, cook vegan, dye my own wool or sell my products on a global scale. 

Come to think of it, I don't even sell them on a local scale!

As a sufferer of the auto-immune disease known as lupus and other medical jargon, I find it difficult just to do the small amount I can. 

Very few people know much about lupus, not even the doctors. 

Sufferers go to rheumatologists instead of actual lupus specialists. 

Lupus is NOT like diabetes where there's a "Type A" or "Type B". 

EVERY lupus patient is different. 

Lupus causes the White blood cells, (that usually attack foreign bodies, such as infection) but for a lupus patient the cells attack healthy tissue and our own organs. 

It is a progressive disease, it only gets worse as time goes by, causing organs to fail and side effects from the medication you take to help with the pain. 

For some people, such as my Dad and myself, the disease can change HOURLY. In the morning I can be fine, ready to see friends or go out, the next I could be heading to bed overcome with pain. 

It's difficult to make a healthy person understand, it's a difficult thing to watch someone go through, it's a horrendous thing to have to cause your family to go through.

It's something I wouldn't wish on anyone, but it is a subject that warrants more research and understanding.

Do you know someone going through this? Or something similar?

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