Showing posts with label Lupus. Show all posts
Showing posts with label Lupus. Show all posts

Wednesday, 31 December 2014

Busy resting!

Might sound like a bit of an oxymoron to most people, but for anyone like me it's quite common. 

Even when I'm doing nothing I find it difficult to actually turn my brain off!!!

I'm the kind of person who likes to be doing something even if it's just writing or reading or drawing. 

But lupus leaves little space for simply pushing through the day, for most people you push through the day and sleep in a little the next day or just take it easy. But for anyone with lupus or diseases like it, it's difficult to just keep going. 

Your body demands rest, or shuts down and you end up in hospital. 

I've been in hospital twice over the last three months with undiagnosable kidney weirdness.

I've had multiple ultrasounds, blood tests, even a hesitant CT scan. But the doctors still don't know what's wrong. 

Because of where we live I have to go to Joondalup Health Campus. 

The only upside is "The Buttery" cafe across the street. BEST banana (and golden syrup) cake ever!!!! And they also do a phenomenal sour cream and nectarine cake!!! SO EPIC!!! 

But the hospital is mainly for accidents, no renal team.

So I have after being in hospital October onwards, I'm just waiting for an appointment at Charlie Gardner Hospital with a kidney specialist there. 

Waiting is TORTURE!!! 

It's so frustrating not to know what's going on in my guts!!!

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Well I started writing with 'holidays' as my intention. I never write much when life gets busy, it's simply not a priority. 

It's times like these I sit back and tell myself to:


As in the opposite of overwhelmed (any young justice fan should understand).

Anyways, my birthday is the 23rd so that was fun. Got some AWESOME T2 products including the following tea and a gorgeous Gardiner teapot and cup set. 


And here comes my Christmas Eve pumpkin. 

If there was such a thing, but I made him on Christmas Eve so I suppose it works. 

Either way it's cute, I'm going to make a little garden to go around him and hopefully end up with a little character to live there.


And finally here are my gloves in progress. I could never find tipless crochet glove patterns. I'm sure I'm not the pioneer, but on the off chance that I am, what are the chances no one thought of this before??? 


To anyone whose reading, how was your Christmas? Any special Christmas projects? Crochet or otherwise?

Wednesday, 19 November 2014

Lupus Awareness

I never seem to quite catch-on to this blogging thing. 

I see all these amazing people, doing amazing things. 

Changing the way people think, feel and create. 

I do no such thing, I don't reach a huge audience, I don't have a new adventure everyday. 

I don't live organically, cook vegan, dye my own wool or sell my products on a global scale. 

Come to think of it, I don't even sell them on a local scale!

As a sufferer of the auto-immune disease known as lupus and other medical jargon, I find it difficult just to do the small amount I can. 

Very few people know much about lupus, not even the doctors. 

Sufferers go to rheumatologists instead of actual lupus specialists. 

Lupus is NOT like diabetes where there's a "Type A" or "Type B". 

EVERY lupus patient is different. 

Lupus causes the White blood cells, (that usually attack foreign bodies, such as infection) but for a lupus patient the cells attack healthy tissue and our own organs. 

It is a progressive disease, it only gets worse as time goes by, causing organs to fail and side effects from the medication you take to help with the pain. 

For some people, such as my Dad and myself, the disease can change HOURLY. In the morning I can be fine, ready to see friends or go out, the next I could be heading to bed overcome with pain. 

It's difficult to make a healthy person understand, it's a difficult thing to watch someone go through, it's a horrendous thing to have to cause your family to go through.

It's something I wouldn't wish on anyone, but it is a subject that warrants more research and understanding.

Do you know someone going through this? Or something similar?

Wednesday, 23 April 2014

Look what happens!

What happens when you've got nothing to do?

You make something, well I do anyway. I make ALOT of things! I mean, like, heaps. 

But what happens when I'm not motivated?

Nothing, well something, but nothing. 


I suffer from an autoimmune disease called lupus, I get arthritic symptoms without the arthritis. I get sick super easily so I have to be uber careful about being around sick people. I could be fine in the morning and then sit down on the couch and sleep for the rest of the day. Some days in just can't get out of bed, some nights I just don't sleep because the pain is just that intense. 

But this disease is not like diabetes where there are designated 'types' instead every single case is a totally different story. My dad suffers from the same disease but even the difference between us is amazing. His is a much more severe case that really takes a toll on our family. 

I've never really mentioned this before on my blog because it seems to be a hard thing for me to communicate to people. Only those who spend an enormous amount of time with me actually understand. But knowing this may give you a little insight into my life. 

I knit and crochet because most days it's hard for me to do much else. I've put some random photos that give you a little interest! Might be a little disjointed to what I've written but I'll let you be the judge.


This is our GORGEOUS new puppy Thea. She's about 18 months old and pre-trained, (so much 
easier!) she's so needy, but in a good way. She just sits next to you on the couch and follows you around the house. She waits at the back door to go to the bathroom and brings her little toy to your feet when you come home. What could be better! Unless your not a dog person, but wait there's more!


Here's a fuzzy picture of my scrappy balls of wool to try out Entrelac crochet, hmmm interesting. I'll show you how it turns out! (Picture a cheesy grin inserted here!)


Teaching crochet to a friend of ours, tiny little hands, tiny little hook. Bad photography but hey it was nighttime and perfect opportunity! 



Here is our beautiful pussy cat! She's gotten suprisingly more cuddly since Thea's been here. It's unfortunate that she's put out by the dog, but nice that we are actually getting some affection!!


Here's is about 3/4 of a teeny, tiny baby jacket for a little stuffed monkey. But I mean Oh My Goodness I had to compleletely rewrite the pattern because even the premature size was way too massive!


I am in love with this crochet dragon scarf!! But I can't afford it at the moment so I'm attempting one of my own.
Pattern can be found here


And finally, ahhhhh, cookies, or at least the makings of them!